Monday, January 12, 2009

what's been happening

Henry did fantastic going back to school last week. I have hesitated to write about it because I know many other kids had a rougher time getting back on schedule, and I don't want to seem like I'm bragging! But we all know that what goes around comes around, and I'm sure we've got a rough week in our future.
Monday he got off the bus in a cheerful mood, told Bill he had "a terrific day", and that he wanted to "go home and play with that Wii" instead of going to daddy's workout place. Bill obliged, and they had several rousing games of bowling and baseball. (Back in the summer I wrote about how much Henry enjoyed playing Wii. We didn't end up getting one for his birthday, but did score one for Christmas.) I can't say enough about the Wii. Not only does it get our sedentary guy moving, and trying new things, but he loves to play with others, and cheer them on. "Pick up that spare Daddy!" he'll holler, frame after frame after frame...
The only downside, as you might have suspected, is getting him to stop playing. He becomes quite single-minded and frantic about playing, and shouts and cries when it's time to stop. Hopefully that will get better over time.
Here is a little video from Christmas day at my Mother-in-Law's house. Henry is bowling and you can hear him announce "8 pins!" and then "1 pin!" He also likes to mimic some of the game noises...


Another cool thing that happened Monday was that Henry sat and watched the first hour of the Fiesta Bowl with Bill. He really watched and paid attention to the game, and echoed every single thing that his dad said ("Ahhh- you gotta catch that!") It was pretty neat to see and hear!
Tuesday evening Henry told me his teacher "wrote a very special note". I checked his notebook, and here's what it said:
Henry has been an excellent A+ student! I told him that I would write a very special note. We are very pleased with Henry's hard work and excellent attitude! Keep up the good work Henry!
I can't be sure what was behind this, if it was a bribe of some kind? But whatever the story behind it, I loved reading it. A hell of a lot nicer to read than the notes last year about how he was hurting his friends. And a good reminder that positive reinforcement works with kids. All kids.
Considering what a good week it was, I was caught off-guard by the sadness on Friday. You know, the sadness that is always there, beneath the surface, when you have a child with a disability. I was reading through all the papers that Henry brought home, and there was one announcing get-togethers for siblings. The flyer included quotes from kids about how much fun the groups were and explained that they discuss the hard parts and the good parts of having a special-needs brother or sister.
And I just started crying. Bam.
Um, hello? Your son was diagnosed with PDD 4 years ago. His brother and sister are both siblings of a special-needs kid. This is not news.
But sometimes you see it in a different context and it somehow strikes you anew.
And that brings me to another item I wanted to write about. We have talked to Tommy a little bit about Autism- explaining that some things are harder for his brother, etc. So one morning before school they were watching 101 Dalmations. There's a scene where all the dalmations are supposed to go to bed, but one keeps watching tv. So we're driving to the bus stop and Tommy pipes up "mommy, maybe Lucky* is Autistic. Because he gets right up close to the tv and doesn't want to stop watching it, just like Henry."
Then he turns to Henry and says "Henry, do you know that you are Autistic?" And I just about drive the car up onto the sidewalk.
Henry doesn't even look up from his book, just replies "yes".
So there we have it. All my worry about explaining stuff and the sibling relationship was for nothing.
Here are the brothers having a sword fight on Christmas- the weather was beautiful in Charlotte:

7 comments:

Niksmom said...

Oh, the sadness; the *damned* sadness. Sure has been making the rounds lately, I think.

But the rest of it —especially the note from the teacher!! ALL.GREAT.STUFF. :-)

Eileen said...

Haha! Love the sword fight. Laughed at you, "hey, I'm not involved in the sword fight". Just made me laugh! :-)

I got hit with some of that sadness today after observing Andrew at school and realizing that other people may never fully see him the way I do. I just don't think they see the same kid as I do.

Tommy and Brian are so much alike (which reminds me that I need to still send the drawings. sorry about that! ) The two of them will be experts in autism though. Brian has made similar comments like Tommy did about Lucky. Monday Brian started a computer class at the YMCA and when I picked him up, I noticed a boy who was on the spectrum no doubt, but only subtle mannerisms that I wouldn't have thought Brian would have picked up on. Then when we were walking to the car, he said, "Mom, that boy on the elevator with us that is in my class? I think he has autism."

kristina said...

I remember Lucky----sometimes we grown-ups really do over-worry, no?

Yay for a great start to the new year----the one place Charlie has been happy of late is school. Thanks for sharing that A+ note.

Ms. TK said...

Well. The first line had me so excited that I had to read this twice.
Now.
Did I tell you about the school? What a different feeling it is when a school "gets" your kid?

I am so proud of Henry. And you.

And that sadness thing. Um, please refer to my post of last week, "The Storm Has Passed".
It takes your breath away, doesn't it?

But those moments pass.

And you can enjoy footage of your son playing Wii and being adorable and smiling and jumping up and down...
...like everyone else.

When M. got her PDD-NOS badge, I remember the guy sitting in our kitchen and complimenting how cute our house was. I reminded him that we were talking about my daughter. He got serious then he said, "Oh, yes. Such a nice house. But you know, rich or poor, disability does not discriminate"

WTF?

I think about that alot. I've sort of rearranged that and I'll share it with you:

Happiness does not discriminate, either.

kristi said...

Great post. I sometimes get sad too.

shelbug99 said...

You know, I wonder if the sadness doesn't hit teachers of kiddos with special needs too. I've just been feeling so down and discouraged lately with my students.

I think it's been exacerbated by the ridiculousness that is the Ohio Alternate Assessment.

Anonymous said...

oh gretchen, i love this post. it's all in there, the pride, love, worry, sadness, confidence.

that short exchange between henry and andrew is amazing.