Thursday, July 31, 2008

update on the school situation

I am totally drinking the kool-aid on this new school. My husband, not-so-much. And that's good- one more example why it's good to have 2 parents to help make these decisions.

Like, on our tour, when she mentioned that they have early dismissal every Friday? I heard that, but kind of filed it in the back of my mind- we'll figure that out somehow. But Bill was like "what would we do about the Fridays? What if the school district won't pay for it and, even with the Autism Scholarship that our state offers, we still have to pay $8000 a year out-of-pocket?"

Autism moms out there- are you sitting down? Because this will surely shock you: it looks like we will have to fight a little to convince the school district that this is the best thing for Henry. I broached the subject in an e-mail, and the Director of Special Ed wrote back saying (to paraphrase) Henry has made great progress here and I think he will continue to do the same in this community setting where he can spend lots of time in the general ed classroom and remain close to home and can go to school with his brother...

The first time I read the e-mail I was just pissed- she's saying no. A few hours later, I read it again and thought, ok, she is saying positive things about Henry, and I can give her the benefit of the doubt and think that she believes these things and isn't just trying to save money or whatever other political reasons she might have to keep him in the school. The bottom line is that most administrators probably only know the kid on paper. They talk about him once a year at the IEP meeting, and then everything is carefully crafted to be positive. Remember the school psychologist who observed Henry? He didn't happen to observe any disruptive behavior, basically thought the kid was cute as a button and a little renaissance man. Yes, those words can describe my child. But he also has defecits- lots of them. I am his mom and it may sound odd to hear me talking like this. But if no one else will, I have to.

I have been drafting a response that would involve calculating how many days this year I got a note home saying that Henry had hurt someone, and how many times that resulted in him missing out on "the general ed classroom" that day, or even a special activity.

But yesterday I got a big boost: I had e-mailed Henry's classroom teacher, asking her to call me. We decided that she is really the only one who knows the school Henry- day in and day out. (I should have e-mailed her a week ago, but at first thought that might be odd- like asking your current boss about a new job you're interested in.)

In brief, (this is already NOT brief) Mrs. C totally agreed with me. She offered to call around and ask some of her colleagues for any inside scoop on the school, but concurred with all my reasons for thinking this was a good move for Henry. As I suspected, she was basically alone in trying to manage the kids in her classroom, and agreed that a whole school full of people who get it would be preferable. She also pointed out that special areas like art and music would be more accessible to Henry, as the ones in the regular elementary school are sometimes too involved or complex for her kids to participate in.

And then, the kicker: she is actually moving, and won't be back to teach this school year. And when she called to tell her supervisor about this, she was told that her supervisor is no longer working for the county. This type of inconsistency is one more reason I am looking at the private school. Yes, they may still have a high teacher turnover, but the program is more likely to remain consistent.

Mrs. C also offered to talk to the Director of Special Ed about Henry, and I have also received some ammunition from a certain fiery Cuban autism teacher I know, which will help me in my rebuttal. I'm not good with confrontation, especially confronting authority. But I can learn to do it for my kid.

My 20th high school reunion is this weekend. Yesterday I looked through a bunch of old pictures, scanned them, e-mailed them to some friends, and laughed and laughed and laughed. I am looking forward to more laughter this weekend. It seems like I am really thirsty for it lately.

7 comments:

Niksmom said...

Enjoy the reunion. :-)

Make sure you get written supports from Mrs C and any others...paper trails and stuff are harder to dismiss (by the school). Good luck with that situation...lt us know if there's anything we can help with.

pixiemama said...

Hi -
I don't think I have introduced myself or commented here before. I am relatively new to the blogosphere. I wanted to tell you that I think you hit the nail on the head with the administrators (that they only know your child on paper), and that the only way to work around that is with consistant feedback from the teachers who have had daily contact with your child.

My son with Asperger's (or high-functioning autism ... that has yet to be determined) will be attending Kindergarten at our local school this fall. He will be in a regular ed classroom - which is absolutely what I wanted. But... I also absolutely want him to have a full-time behavioral therapist. The school psychiatrist who met my son ONE TIME is fighting me tooth-and-nail on this (and the school has to agree to it before the therapist is allowed into the classroom). This psychiatrist has taken it upon herself to determine that Foster doesn't have autism (because she met him one time in a one-on-one setting, which is a pretty accurate picture of how he'll act with 20 other screaming children around him for 7.5 hours per day, right?) he merely has fine- and gross-motor delays.

You may also want to see if the private school you want to send Henry to has any unofficial insight that might help you get the district to fund him.

And I don't blame you for drinking the Kool Aid. When we see something that we truly think will work for our kids, look out!

Nice to meet you...

GClef1970 said...

I'm trying to figure out who that Cubana autism teacher would be... ;-)

In light of this new info (teacher and supervisor leaving!), I definitely understand why you're drinking the Kool-Aid. If that much was changing in Conor's school situation, I think I would be having a heart attack.

Keep us posted on your progress. I know you'll get the job done. We're all Mama Bears when it comes to our kids. :-)

Anonymous said...

i have NO DOUBTS that you will find a way through your own persuasive, informed, and absolutely righteous stand on what's best for Henry along with the help and support of others (including Mrs. C) to make sure that Henry gets into that school.

and i wish for you an entire weekend of laughing so hard you nearly pee in your pants!

xx

Eileen said...

It sounds to me that the way the new school is set up, Henry will get more exposure to peer models than he will in the districts placement for him. I don't like the fact that the class he was in last year took away his mainstream opportunities as punishment. This defeats the whole purpose. What a mixed message this sends to Henry. I wonder if the doctor you took Henry to recently (wasn't there an eval with a psychiatrist recently, outside of school?)could write something up for you to help support the decision for him to be placed in the new school. I would argue the fact that his current school did not teach to his learning style and challenge him in the areas that are a strength to Henry. There is only so much you can do as a classroom teacher without one-to-one aides. You know what you have to do, and I am sure that your won fiery spirit will come out, Cuban or not, when it needs to.

Good luck!!! Keep us posted.

Have fun this weekend too!

kristina said...

Alas, an all too familiar situation----it would also be good to get a private evaluator to observe Henry at school and to visit the private school, and to write up a report. This would be independent of your and the schools' views; good to have should legal stuff ensue.

Does the school know you have this blog? Mine was reading mine (the My Son Has Autism one) when we took Charlie out of school, before he got into a private school. I think the blog provides, for you, good documentation of how Henry has been doing for these years. Yes, I may sound paranoid, but you never know and it sounds like you may have some disagreements ahead----but always worth it for our kids.

Ms. TK said...

Oh, I'm late on this one, but...

1. Hope the reunion was a blast.

2. Drink the damned Kool Aid. Have Mrs. C, the school marching band, and the class guinea pigs speak on Henry's behalf...he deserves a school that GETS IT.

My daughter doesn't go to an "Autism school" but a school for kids with differing LDs...and the change is nothing short of miraculous. We've had more progress in 3 months than I've seen in 4 years. It is also bleeding over to things like camp and parties and things that involve NT kids - the "general community".

Do it.

Email me if you need any more support. I can't speak enough to the miracle that has happened in our lives.