First, a little rant that I can't keep inside: For some reason we have been getting US magazine at my office. Jenny McCarthy is on the cover this week, with the story title "How I Saved My Son." I have tried (mostly) to keep quiet about her- some of my friends may like her or agree with her and I try to keep a live and let live mentality... But this woman does not speak for me. She is not "autism mom" personified, and I'm afraid that the general public sees her that way.
US magazine is not high-level journalism, of course, but this article contains quotes from her like "I made a deal with God the day he was diagnosed. I said, 'You fix my boy, you show me the way and I'll teach the world how I did it.' ... We're recovering kids from autism! Evan was nonspeaking, hands flapping in the corner and didn't know anyone was in the room. Look where he is now. I healed a vaccine injury." Well, as long as it's all about you!
It really reads as if this woman is using her child's disability to maintain her own fame. Please, God, let me write a book about my child's struggles, so that I can go on Larry King and yell at doctors from the American Academy of Pediatrics. If God were going to bestow special autism mom wisdom upon somebody? I can think of a dozen other women I know personally that he might choose- that he already has chosen, as a matter of fact. And those women put their heads down, get to work, hug their child and hold their friends' hands.
My son also has many more skills than he did when he was diagnosed. I don't claim to have cured him. He has grown and learned, like any child will unless he is locked in a closet somewhere. We all do our best Jenny, and I thank God for the other autism moms that I look to as sisters. But I don't count you as one of them. You are doing us all a disservice when you claim that you are the first and only mom to care enough to try to help your son. Your son will likely continue to struggle in his life. You need to stop parading him around as a "cure" story. You were and are blessed to have him in your life, and for all you think you have done for him? He has done more for you than you will ever realize.
__________
Ahem. Anyway. Last night a few exciting things happened:
1. Henry brought home a BIRTHDAY PARTY INVITATION. For a boy in his class. I honestly can't remember the last time Henry was invited to a birthday party. It was probably when he was 4 years old- for another kid at L's house. He has never been invited to do anything with a classmate.
2. We went to the open house at Henry's new school. We met Mr. D (the "best buddy" that Henry hangs out with at recess time), the classroom teacher, the music teacher, the classroom supervisor, and some kids in Henry's class. The cool thing was that the kids seemed to say hello to one another spontaneously- without parents urging and nudging them toward one another.
Mr. D told me that he and several others have been so touched by Henry telling them that he's "going to miss them". We talked about how that's Henry's way of reaching out- trying to let you know that he cares about you. I thought he only said those things to Bill and me, but whaddya' know? He has some other special people in his life too.
There is one mother that I recognize from the tour I took of another school for autistic kids this spring. (The tour that left me in tears). So I know her family is new to this school also. I was talking to one of the teachers when I heard her daughter come over and say hi to Henry. He said hi back. that was really about all, but my eyes met the girl's mother's eyes, and I knew we were both thinking the same thing. I knew we were both about ready to burst with pride and with relief that our children are finding more opportunities than had been open to them before.
As I said in my little rant above, our children will continue to grow and change and learn, no matter what we do, or even in spite of what we do. But I am hopeful that Henry's natural growth and learning will be fostered by his new school environment. I feel like we're on the right track.
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11 comments:
And the mamas said:
"Amen!"
to both the Jenny rant (I can think of very few people she truly "represents") and to the happy news of the invite and the good socialization.
Yes, I can't think of anything better thatn what pixiemama already said! AMEN!!
I totally get that moment w/the other mom; Niksdad and I often exchange those same sorts of looks lately. The kind that make you feel your heart just burst w/happiness and pride. YAY!!!! xoxo
Yay for Henry and his new friends, and I'm with you 100% on the rant. Jenny McCarthy does not speak for me or my son.
Everytime I think of Jenny McCarthy I picture her sitting on a crapper wearing a pair of Candies shoes. Ugh.
I'm glad her son is doing well and I hope it makes her feel good to be pushing forward whatever autism wisdom she feels she has to offer. But every time someone says to me "Have you seen that Jenny McCarthy book?", I'm ready to start swinging. I hate it when parents talk about how THEY did all sorts of things that lead to their kids' recovery. So I guess that means that the parents of the kids that remain non-verbal and in diapers are just sitting around with their thumbs in their asses? Ugh.
Anyway, I'm glad that Henry's connecting so well with the people at his school that he's "missing" them :-)I can't wait to meet your cuties in person. When are we rescheduling for?
Regarding the rant: Yeah! Me too! What you said!
And regarding the blossoming friendships: YEAH!!!! It's SO great to hear!
I agree with your rant. Every time I see her on TV, she sounds like a condescending miss-know-it-all and I don't think she's being fair.
Okay, wait! I had to stop reading after the rant to comment and say HOOOOOOORAAAAAYYYYY!!! I completely agree with EVERYTHING you said!!!
Okay, heading back to read the rest. :-)
And now I'm all excited about the invitation and the open house! I'm bursting with pride with you. Our kids have come a long way.
:-)...
It's funny; for awhile, I thought that she was legitimately helping and bringing awareness...now with all of the "cured" stuff and publicity...I feel the same way. I felt that way on Friday, after a long day of work and kids and autism, reading that article...
I'm with you on that, sister!
As for the invite - I'm so happy for you. All of you. It feels good, no?
Loved this post, top to bottom. Amen re: Jenny, bravo re: Henry!
This is great news about the school and the party invitation :-)!!!
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