Thursday, August 14, 2008

Tonight we have "meet-the-teacher night" at Henry's new school. Now, before you get all excited and think that I kicked some school district butt to get him in, let me explain.

It turns out that, if you can't get your school district to agree to send your child to the private school, (I couldn't, not without calling an IEP meeting which couldn't be done until after school had already started) you can send him to the "community school" (called charter schools in most other states) arm of the same school. (If there is a community school slot available, and if the spot is offered to you.) You withdraw your child from the district of residence and enroll him in the community school.

Holy shit, this stuff is unclear. One person tells you one thing and the next person doesn't know anything about that, and you send an e-mail and leave 15 messages and wait a week to figure out what to do next. I feel like I've been through the wringer.

It doesn't help that my husband is still not drinking that kool-aid, while I'm guzzling it by the gallon. At least he's willing to give it a shot, seeing as I'm so flipping sure about this.

I'll agree with him that the place has a bit of a cult-like feel to it. Everyone is so friendly and smiling and talks in such soothing tones. But I like to think that that's because they work with autistic kids all day, and friendly, smiling and soothing are good ways to be in that environment--not because they're trying to brainwash us.

Our school district's refusal to agree to place Henry here just reinforces my feeling that they don't really care about my child. And their argument that mainstreaming in the public school prepares my child for the "real world" he will someday work and live in holds no merit with me. You know what will prepare my child for the future? Being in a safe, nurturing, understanding, respectful environment that works on his weaknesses and works with his strengths to give him an excellent education.

The "real world" can be a pretty shitty place, and I don't see any other parents going out of their way to prepare their kids for that. Why should I be expected to?

I think Bill summed it up pretty well with this analogy: a couple summers ago Henry played t-ball through our city's parks & rec dept. We told them up front that he had autism, and they were quite willing to work with him and include him. And it was fine- it was a decent experience. But then this summer we found the Miracle League. They did more than just let my kid play. The team was made for kids like him, and parents like us, and it was more than we could have hoped for. This is my hope for our new school.

I've realized that part of this is selfish. I went to a parent orientation meeting the other night, and had the most unusual feeling as I pulled into the parking lot full of cars with autism ribbons on their bumpers. The feeling grew as I looked around the room and saw parents nodding and smiling at the school founders who were speaking. I think this feeling that I'm not so used to is belonging. As Drama Mama would say, these are our people.

Just as my son will no longer be relegated to a room at the end of the hall, I will no longer be relegated to the edges of the parental realm. I would not have participated in the PTO at his old school, because he didn't really participate in the school's activities. This new school requires a lot more parental involvement, and I think that will be good for me- for all of us.

I was telling a friend about the baseball analogy- a friend who's son is 10 and plays select-league baseball. I said "yeah, maybe Miracle League isn't 'real world' baseball, but I don't care." She interrupted me and said "Or maybe Miracle League baseball is 'real world' baseball. Just as much as our league is. It's about giving everyone a chance to play."

14 comments:

Eileen said...

Well said, my friend!

Xia Diaz said...

I hope you do get exactly what you're looking for in this new school. Henry already lives in the "real world." And this "real world" should care about each and every single child. It seems to me he'll get that at this new school.

Maddy said...

Well said. I'm so happy for you all. This sounds like such a great 'match.'
Best wishes

pixiemama said...

I'm so glad that Henry is in the school YOU want him in. As well-meaning as individual teachers and administrators can be, most have never walked a foot in our shoes. Well-meaning is not synonymous with truly understanding.

As far as what our children will need to prepare them for the "real world?" I work sometimes 12 hours a day, doing what works for me - writing, marketing, thinking, promoting - from an office in my home. I am (if a bit manic & more than a bit anxious) pretty "neurotypical." I make a decent living - not luxurious, but enough to feed, clothe and house a family of 6 - with almost no real, face-to-face contact with the real world. These kids? They will find their way in this new, revised "real world." The school needs to revise its own vision of the future and figure out how to truly get behind our kids.

GClef1970 said...

I've said it before and I'll say it again: Kids are not cookies and we don't need any more cookie cutters.
Keep fighting. I know you'll get what's best for Henry.

Niksmom said...

Wow, Gretchen, this is wonderful. What you said about belonging really hits home. I hope and pray that this school is a place where Henry and all of you can not only feel a sense of belonging but a sense of how valued he is, you are.

Anonymous said...

"You know what will prepare my child for the future? Being in a safe, nurturing, understanding, respectful environment that works on his weaknesses and works with his strengths to give him an excellent education."

i'm SO with you, gretchen! you said it perfectly! good luck tonight!

Mary said...

I can't wait to hear about Henry's experience at the new school. I've been struggling with these sorts of issues this summer because Bud had such a difficult year in his regular ed classroom and such a wonderful summer in his special ed summer program. Granted, the summer program was half-days, four days a week, with low academic rigor, but still - the change in his mood and attitude about school was striking.

Of course, there is not a specialized program around here, or even a special ed classroom, as our district is full inclusion, so my options are limited, but still - I wonder.

ghkcole said...

Hey, I'm a teacher in the school my son goes to, and I still feel queasy about sending him back, or sending him anywhere. Whichever choice I make I have something to feel worried about. OR: Maybe, just maybe, I can learn to listen to my gut. You so often do that so well. I admire you. I admire your good instincts.

kristina said...

This sounds so promising----people ask about mainstreaming Charlie and I emphasize that that wouldn't be the best way for him to spend his time at school. The self-contained classroom environment that he's in provides a learning experience set up for his needs; sometimes you have to let go, no?

So you would be able to send Henry via the charter school option (if I'm reading this right), or will you still have to work it out with the district?

Drama Mama said...

It's the difference between "getting through school" and "thriving" or "Having a total school experience."

I wholeheartedly applaud and support you. You've seen the evidence.
x
o

Elizabeth said...

I'm new to your blog and really liked the post. The whole school thing with a special needs child is just, well, unbearable, and I'm happy when someone gets it right! I wish you luck and look forward to reading more.

Elizabeth said...

I'm new to your blog and really liked the post. The whole school thing with a special needs child is just, well, unbearable, and I'm happy when someone gets it right! I wish you luck and look forward to reading more.

KC's Blog said...

I love this post, everyone with an Autistic child should read it.
You are so right, the school could have at least cared enough to agree to the new school. Sometimes schools can be so ignorant. K.C. is in a new school yet again and I am hoping and praying it goes well, so far so good.
Thinking of you guys and wishing you the best always!