Sorry about that last post- I was truly feeling sorry for myself, and doubting myself because I had done something stupid. When I'm feeling that way, every little stupid thing like taking out the trash seems to weigh on me. Anyway, thanks for the pity party.
Oh, and my boss gave me a Starbucks gift card on Friday for "staff appreciation week"- perfect timing, eh? I'll not be without my non-fat latte for the next few weeks, at least.
We had a nice weekend. Bill's office had their company "picnic" at a bowling alley this year. We tried to prepare for the worst, hope for the best. And we were pleasantly surprised with a fun afternoon. When we first got there we were initially waylaid by the video arcade, and I was concerned that one of us would have to stand in there with Henry while the others bowled. But I had a hunch that Henry would enjoy watching the bowling, if we could get him away from the video games, and I turned out to be right. He did his excited, running-in-place, hand-flapping, humming happy dance and cheered for each person as they bowled.
Tommy was totally into it, and would grab his 7-lb bowling ball and walk right up to the lane when it was his turn! We had bumpers and a ramp to assist the kids with actually getting the ball down the lane. (I've been noticing something lately: as Tommy's development and physical growth catch up to Henry, it's as if they are closer in age than they really are. It's pretty cool, and gives me hope that they will continue to grow into playmates. But it makes me wonder also, how long until Thomas passes Henry by?)
After bowling, we were invited back to a co-worker's house. This, also, went surprisingly well. There were 2 other first-graders there, and I had a couple of those moments when you're punched in the gut by how "un-typical" your child is. But they weren't really like punches in the gut this time, more like a tap on the shoulder. I would notice it and then shrug and move on.
The mutual interest in Star Wars was enough to give the kids a little common ground. Henry stayed in the house and looked at the resident boy's books, calendars and movies. He then requested to watch The Return of the Jedi.
I also think my frame of mind helped make the evening comfortable. I used to feel uncomfortable that my kid wanted to stay in and watch a movie, while all the other kids were playing ball outside. But as we have grown accustomed to having a child with an ASD, and as our family, friends and co-workers become accustomed to the idea, it now just feels easy to say "Hey, is it all right if Henry looks through your movies? That's something he enjoys doing." And no one seems to bat an eye.
I don't want to let autism be an excuse that allows Henry to be held to different standards, but it just feels nice to not have to try to cover it up either.
I should add that this is the first time we've gotten together with these friends in over a year. We really don't socialize very much. So that's why I am so happy about how it went. And it probably went so well precisely because we don't do it very often. If we tried to make Henry hang out at someone else's house until way past his bedtime every Saturday night, it would not go so smoothly.
One aspect of the evening did make me a little uneasy (aside from the fact that I drank too much wine): I talked quite a bit with a woman who has an 18-month-old son. (They didn't bring the boy with them.) She asked me a lot of questions about Tommy's development, and Henry's, and lots of questions about autism. It became clear that she is concerned about her son's development. But all I really sifted out of the discussion was that he doesn't speak in sentences (but does have some speech) and they feel he is inordinately preoccupied with watching Sesame Street.
Have any of you ever been in that situation? Where a parent is asking you for advice about their child? I am more than comfortable telling people about Henry and my own situation, but felt very unsure what to tell this woman. I found myself saying "lots of children his age are preoccupied with Sesame Street, I don't think that's unusual." Lots of people said things like that to me when Henry was small, and that was not at all what I needed to hear. Without even seeing this child, I am hesitant to recommend that she have him evaluated. But I also don't want to put off her concerns, because we all know that the mommy instinct is a good one.
I'd be interested to know what some of you would tell this woman. Her husband works with Bill, so I'll be able to ask him to pass some information along to her if appropriate.
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6 comments:
I seem to be getting asked from other parents about their kids now, but I believe it has more to do with the fact that I work for and EI agency than the fact that Roo is mine. Being that I do work for EI, it gives me an easy out to say "It cant hurt to get him/her evaluated to see if he/she qualifies for services." I have a # to refer parents to now when they ask. I do feel uncomfortable saying too much and some parents seem to be looking for me to make a diagnosis or something. This just happened last week when the nurse of the sister of the boy I work with approached me with concerns about his son. He had already called EI and they were suppose to be calling back to make an appointment for an eval From what he was describing about his son, it did around like an ASD. I advised him to get an appointment with a Neurologist now because they usually have a 6 month waiting list. I figured EI would most likely suggest he see a neurologist anyway. I advised to make the appointment and you can always cancel if you don't feel it is necessary.
I am happy you had a nice night out with friends :-)
Wow, my son loves looking through other people's movies too! One time he snuck out of the house (way scary) and went to a house about 15 houses down. He had been there one time and had never been inside. Anyway, he went up to the door (he's 7), knocked, and went straight to their TV to look at their movies!
I also hear you on the advice. I get many more questions from parents now as well. "Do you think my son is..." "He does this..." I try to describe the DSM IV criteria and how they need to meet at least 6 of the 12 to be on the spectrum. It's pretty simple when you get down to the basics. The other thing is, sometimes the only way they (the parent) is going to feel relief is if they get an "official answer" so it never hurts to tell them to talk to a neurologist.
It sounds like Henry, and all of you, had a fabulous evening. I've learned to remind myself, any social situation---being in a strange new house---is a lot for Charlie----and if he can handle that, watching videos while the other kids are elsewhere seems not only all right, but a smart mom's recognition of when "enough is enough." And it was great you could talk to that other mom----she must have needed a sympathetic ear. I would suggest, too, that she start making some phone calls, just to allay the questions in her head. Perhaps she was only telling you the "tip of the iceberg" about her child being overly "into" Sesame Street.
Live it up with that Starbucks card!
This has happened to me as well, a concerned mother will begin to ask me about Littleman's development in relation to her own child's and soon the concerns are voiced. I usually refer folks to the local child development agency for a screening. They are the professionals.
Glad the evening with friends went well for you and Henry. The trick with Littleman is sensing when his social expiration date is coming and say our goodbyes before the meltdown ensues.
I do the same as Tara. Remember how you had that nagging feeling that something just wasn't ....*right*? I think those mothers feel the same way. I give information about Conor (and it is usually in answer to questions like, "When did you suspect something with Conor? What made you think something was wrong?") and tell them to contact their local agency. Tara is right: they are the professionals. I try to alleviate the mom's fear by saying, "If you're just paranoid, that's okay. But, if you're not then you're doing a great thing by jumping on it early."
I'll bet a lot of us get asked the same kinds of things. I always put it in a really reassuring way like: "There is probably nothing wrong. All kids develop differently. But an evaluation is free through the school district and that might really set your mind at ease." There is no real reason NOT to, but I think for some people, even setting up an appointment might mean confronting the fact that there might be something "wrong" with their child.
So, by the way: did Henry do any bowling? I often take Oliver to our local lanes. They let us come on Saturday before they open to the public so he doesn't have to deal with the crowds and all the noise. Carrying around and throwing that heavy ball is a great sensory activity for him -- and fun for the rest of us, too!
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